Hospital update

Instead of having family members field calls, emails, and text I thought this would be an easier way to communicate Kadyn's progress. Everyone is so sweet to be concerned. The constant prayers and positive thoughts really keep us going. Kadyn is a true warrior and her love of life is inspiring.

Kadyn has been having stomach problems for most the year. She is on heavy doses of laxatives and stool softeners, but continues to fill up with stool. She has been admitted 3 times since May for clean outs. During a clean out she has an NG tube placed and Go-Lytely is administered until she "goes" clear. The time between clean outs has become shorter and shorter. So, Kadyn was admitted to Children's Mercy in KC yesterday for another clean out (just 3 weeks after her last). However, this time she will have a clean out then a procedure called a cecostomy - "A catheter (a thin tube) placed into the cecum, the first part of the large bowel (in the lower right abdomen). The cecostomy tube is used to administer an enema to quickly and completely evacuate the large intestines." This will allow us to do clean outs from home. No more NG tubes! YAY!!! The surgery itself is pretty simple, but she will be under full sedation.

Day 1 Admitted Saturday

Bit of a rough day. The NG sparked some major anxiety and it took her a bit to recover from that. Thank goodness, for the princess pack from grandma and her new baby (with doc kit) from her buddy Henry keeping her distracted. The clean out went really well. Kadyn was incredible and used the potty the entire time, even waking in the night to go. She was clear and able to stop meds by 4 am.

Day 2 - Sunday

Today, we saw the doctors and they told us they are going to keep the NG tube in until surgery Tuesday. This way we can make sure she stays clear and we are able to hydrate her through it if needed before her IV. She is not happy about being on a liquid diet and told me she really wanted a hamburger this morning. Kadyn is very tired, but in good spirits. As you can see by the pictures below she has had a VERY busy day so far! Koy and daddy cannot get here fast enough for Kadyn. Luckily, they will both be here tomorrow. Koy has been going on lots of adventures with daddy and having a blast, but things just aren't the same without his sidekick.