Saturday, May 23, 2015


by Kadyn's Krew

May 23, 2015 at 07:47AM
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Wednesday, May 20, 2015


by Kadyn's Krew

May 20, 2015 at 10:09AM
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Tuesday, May 19, 2015

There are many restrictions and precautions when you have a life-threatening disease. A compromised immune system makes some of the most popular childhood activities dangerous. Every case of cystic fibrosis is different. Therefore, parents must use their best judgement regarding their child. Kadyn gets sick...a lot. She does get to do many many fun things, but she has also paid the price numerous times. While we have always vowed to let Kadyn live and try (as much as possible) not to keep her in a bubble, we have taken a firm stand against some activities that pose a threat. Gymnastics has always been one of those for us. We told Kadyn "no" to classes. She didn't cry or whine. She pulled up YouTube videos and began to learn all she could. She's determined to be a gymnast no matter what. It's been remarkable watching Kadyn work so hard. But, just yesterday she asked "Mom, do you think there will be a cure for CF by this summer so I can start taking gymnastics class?" Because of the incredible kindness of some very special people we didn't have to wait for a cure. Kadyn's dream came true today. It was magical, beautiful, heartwarming, and as Kadyn said..."This was the very best day ever!" There is truly no way to adequately express our thanks to Stephen Morgan, Fox 5 news and the wonderful people at the Springfield Y for giving Kadyn this gift. It is a day none of us will ever forget. We are all going to sleep tonight with smiles that are refusing to fade. You are all angels ❤️ We also want to thank Crystal and Mark Harrington and Indie Blue Salon for hosting such an awesome fundraiser and raising awareness for Cystic Fibrosis! Cannot wait to see who is next!

There are many restrictions and precautions when you have a life-threatening disease. A compromised immune system makes some of the most popular childhood activities dangerous. Every case of cystic fibrosis is different. Therefore, parents must use their best judgement regarding their child. Kadyn gets sick...a lot. She does get to do many many fun things, but she has also paid the price numerous times. While we have always vowed to let Kadyn live and try (as much as possible) not to keep her in a bubble, we have taken a firm stand against some activities that pose a threat. Gymnastics has always been one of those for us. We told Kadyn "no" to classes. She didn't cry or whine. She pulled up YouTube videos and began to learn all she could. She's determined to be a gymnast no matter what. It's been remarkable watching Kadyn work so hard. But, just yesterday she asked "Mom, do you think there will be a cure for CF by this summer so I can start taking gymnastics class?" Because of the incredible kindness of some very special people we didn't have to wait for a cure. Kadyn's dream came true today. It was magical, beautiful, heartwarming, and as Kadyn said..."This was the very best day ever!" There is truly no way to adequately express our thanks to Stephen Morgan, Fox 5 news and the wonderful people at the Springfield Y for giving Kadyn this gift. It is a day none of us will ever forget. We are all going to sleep tonight with smiles that are refusing to fade. You are all angels ❤️ We also want to thank Crystal and Mark Harrington and Indie Blue Salon for hosting such an awesome fundraiser and raising awareness for Cystic Fibrosis! Cannot wait to see who is next!
by Kadyn's Krew

May 19, 2015 at 11:07PM
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Monday, May 18, 2015


by Kadyn's Krew

May 18, 2015 at 02:04PM
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Saturday, May 16, 2015


by Kadyn's Krew

May 16, 2015 at 03:28PM
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Friday, May 15, 2015


by Kadyn's Krew

May 15, 2015 at 07:42PM
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Tuesday, May 12, 2015

"In late-stage clinical trials, Orkambi was shown to improve lung function in people with CF and significantly reduce the rate of pulmonary exacerbations, which can lead to frequent hospitalizations and worsening lung function. The drug was developed by Vertex Pharmaceuticals Inc. with significant financial and clinical support from the Foundation."

"In late-stage clinical trials, Orkambi was shown to improve lung function in people with CF and significantly reduce the rate of pulmonary exacerbations, which can lead to frequent hospitalizations and worsening lung function. The drug was developed by Vertex Pharmaceuticals Inc. with significant financial and clinical support from the Foundation."
by Kadyn's Krew

May 12, 2015 at 07:26PM
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by Kadyn's Krew

May 12, 2015 at 03:35PM
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Monday, May 11, 2015

There are only 6 tickets left for the boat raffle! Don't miss your chance to win a pontoon boat and support CF!!!! Drawing will be this Friday. Results to be announced on Kadyn's Krew Facebook page. Only a couple more days left to purchase a ticket!!

There are only 6 tickets left for the boat raffle! Don't miss your chance to win a pontoon boat and support CF!!!! Drawing will be this Friday. Results to be announced on Kadyn's Krew Facebook page. Only a couple more days left to purchase a ticket!!
by Kadyn's Krew

May 11, 2015 at 09:29PM
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by Kadyn's Krew

May 11, 2015 at 09:12PM
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Wednesday, May 6, 2015

Yes yes yes!

Yes yes yes!
by Kadyn's Krew

May 06, 2015 at 09:56PM
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by Kadyn's Krew

May 06, 2015 at 03:50PM
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Tuesday, May 5, 2015


by Kadyn's Krew

May 05, 2015 at 04:01PM
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Monday, May 4, 2015

I described this situation to Koy and he said he would go see the puppies. Then, I showed him the video. I think it scared him as much as his answer scared me. Kadyn, was in the other room so I went in and explained the same situation to her. She said "No way! It could be a trap!" Two kids who have heard the exact same things come out of my mouth about strangers...two different answers. I was blown away. I urge you to watch this and talk to your kids.

I described this situation to Koy and he said he would go see the puppies. Then, I showed him the video. I think it scared him as much as his answer scared me. Kadyn, was in the other room so I went in and explained the same situation to her. She said "No way! It could be a trap!" Two kids who have heard the exact same things come out of my mouth about strangers...two different answers. I was blown away. I urge you to watch this and talk to your kids.
by Kadyn's Krew

May 04, 2015 at 09:19AM
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Sunday, May 3, 2015

Hero in every sense of the word...such honesty and truth. Truly one of the very best ❤️

Hero in every sense of the word...such honesty and truth. Truly one of the very best ❤️
by Kadyn's Krew

May 03, 2015 at 08:47AM
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Thursday, April 30, 2015


by Kadyn's Krew

April 30, 2015 at 09:56PM
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Sunday, April 26, 2015


by Kadyn's Krew

April 26, 2015 at 03:50PM
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by Kadyn's Krew

April 26, 2015 at 12:44PM
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Hawg Out CF 2015 #thankyou #thankful #amazed #curecf #cfwarriors #allinthistogether http://ift.tt/1Gvuu1k

Hawg Out CF 2015 #thankyou #thankful #amazed #curecf #cfwarriors #allinthistogether http://ift.tt/1Gvuu1k
by Kadyn's Krew

April 26, 2015 at 11:27AM
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by Kadyn's Krew

April 26, 2015 at 10:20AM
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