Between little bouts of anxiety Kadyn was the ever proper princess She even talked them into letting her keep her dress on instead of the hospital gown in the OR. She LOVED that!
Kadyn did great!
I talked with Kadyn's doctor after...
Her right airway and passages are pristine
Left- not so much. It was not inflamed/red but it was swollen and still very compressed
We believe the major cause of Kadyn's continued problems (aside from CF obviously) is her narrowed airway.
Airways should look like owl eyes staring straight. Kadyn's don't... her left is a bit tilted. The left bronchial tube looks like a rigatoni noodle pressed in the middle.
On this left side they could see obvious signs of thick congested mucus that Dr Ner had trouble moving out/dislodging.
Overall, Dr Ner was surprised how well she looked.
From now on, when healthy, they want her to do 3 treatments a day instead of 2. Concentrating more on IPV than vest...3 is now her new normal.
Now we wait (3-5 days) to see what the virus panel and cultures say.
We are beyond words for all the love, support, positive thoughts and prayers We love you all so much!
I talked with Kadyn's doctor after...
Her right airway and passages are pristine
Left- not so much. It was not inflamed/red but it was swollen and still very compressed
We believe the major cause of Kadyn's continued problems (aside from CF obviously) is her narrowed airway.
Airways should look like owl eyes staring straight. Kadyn's don't... her left is a bit tilted. The left bronchial tube looks like a rigatoni noodle pressed in the middle.
On this left side they could see obvious signs of thick congested mucus that Dr Ner had trouble moving out/dislodging.
Overall, Dr Ner was surprised how well she looked.
From now on, when healthy, they want her to do 3 treatments a day instead of 2. Concentrating more on IPV than vest...3 is now her new normal.
Now we wait (3-5 days) to see what the virus panel and cultures say.
We are beyond words for all the love, support, positive thoughts and prayers We love you all so much!
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