Columbus

A Day of Blessings

I am not a person who likes change. The thought of a new city/ hospital/ doctor was a bit overwhelming. As always, God had us covered.  Mom, Koy, Kadyn, and I got into the car this morning headed to the hospital and took a wrong turn onto a highway. This is usually a good indicator of how ones day will go...  Not today! The wrong turn led us right to Nationwide Children's Hospital.

The hospital is incredible! Extremely clean, open,  bright colors, nice/helpful staff, and very easy to navigate.

After talking with the Nurse Practitioner we not only found she was a retired CF nurse, but also Kadyn's new doctor has a son living with Cystic Fibrosis.  We prayed that God would lead us to a place where the doctors would take everything (CF and GI) into consideration....answered prayer!

We were told that depending on the KUB Kadyn might need an NG tube after all.  She, of course, heard this and her anxiety skyrocketed.  Results were ok and orders were given to clean her out through her cecostomy instead of NG tube...another answered prayer!

Tomorrow Kadyn will have 6-8 hours of testing.  They are going to take her button out and insert a motility catheter.  She will be asleep for the change, but when she wakes up she will be extremely anxious and scared because of past experiences with her button.  I am not only asking for prayers for answers but also peace and comfort for Kadyn.  She is a tough incredible little girl who has been through so much.  I am constantly in awe of her resilience and tenacious spirit.

We will get results on Wednesday and I will continue to update as much as I can.  Thank you for all of the continued prayers and support.  We love you all very much!