Monday, February 11, 2013

Monday Update

Over the weekend Kadyn's liver enzymes increased again and her x-ray showed she was very full.  Her cecostomy tube is doing it's job, but her upper (small bowel) is not.  On Saturday, we put her back on a clear liquid diet and as you can imagine she was NOT pleased.  Not only the liquid diet but 12 caps of Miralax and a new "helper" medicine called Amatiza.  She was not able to take Amatiza before because she couldn't swallow pills. No longer a problem for this warrior! We were doing everything in our power to avoid another NG tube.

IT WORKED! The x-ray on Sunday showed that she was clear.  It also showed that her insides were very very distended (not sure why). We got Kadyn's labs back and her liver enzymes increased...AGAIN (also not sure why).  Kadyn was able to start back on the soft mechanical diet along with a daily regimen of: 12-15 caps of Miralax, 1 Amatiza pill, 1000ml go-lytely via cecostomy tube. She was so happy about the food she was willing (as usual) to do whatever else was necessary.  It is amazing to me that Kadyn does not talk much about going home.  She knows we are here until she feels better.  However, you take her food away and she is screaming to go home from the rooftops.  I don't blame her one bit!

MONDAY...

Great start to the week! Liver enzymes DECREASED over night...PRAISE God!! Her x-ray showed normal patterns and her distention has lessened.  We will continue what we are doing and have an another x-ray tomorrow.  They are going to hold off on labs tomorrow and test her again on Wednesday.

All in all, this is the most positive news we have received in awhile.  Prayers are definitely working!!!
Still no word from Ohio on when they want to see her.  We are all hoping to get a call and date this week.

Thank you everyone! You are keeping us strong and we continually feel the love! Please keep up the prayers.  God is good ALL the time and they are definitely working!!!!

"Do not grow weary and lose heart" Hebrews 12:3

"And whatever you ask in prayer, you will receive, if you have faith.” Matthew 21:22


Here are some pictures from the weekend...Koy and Ryan got here right when Megz left so it was fun  filled!! Gamma gets here today and you would think it's been a month since Kadyn has seen her. She is about to burst with excitement! Our family and friends are simply incredible! There is no possible way we could do this without each and every one of you doing what you do! We love you all!!







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