Tuesday, June 23, 2015
Monday, June 22, 2015
Could not be more proud of my dear friend. Ashley has worked so hard, followed her heart, found her true passion and is it all right here on her website. She has a heart of gold and a true desire to help people share their stories in hopes of helping others. Please check it out. You will not be sorry! So incredibly proud of you Ashley Wren Chandler ❤️
Could not be more proud of my dear friend. Ashley has worked so hard, followed her heart, found her true passion and is it all right here on her website. She has a heart of gold and a true desire to help people share their stories in hopes of helping others. Please check it out. You will not be sorry! So incredibly proud of you Ashley Wren Chandler ❤️
by Kadyn's Krew
June 22, 2015 at 06:09AM
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by Kadyn's Krew
June 22, 2015 at 06:09AM
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Wednesday, June 17, 2015
Learning some new moves at Frozen Frenzy!
So inspiring!!
Saturday, June 13, 2015
This is remarkable!
Sunday, June 7, 2015
Wow. So true!
Saturday, May 30, 2015
CF Awareness Month
Saturday, May 23, 2015
Wednesday, May 20, 2015
Tuesday, May 19, 2015
There are many restrictions and precautions when you have a life-threatening disease. A compromised immune system makes some of the most popular childhood activities dangerous. Every case of cystic fibrosis is different. Therefore, parents must use their best judgement regarding their child. Kadyn gets sick...a lot. She does get to do many many fun things, but she has also paid the price numerous times. While we have always vowed to let Kadyn live and try (as much as possible) not to keep her in a bubble, we have taken a firm stand against some activities that pose a threat. Gymnastics has always been one of those for us. We told Kadyn "no" to classes. She didn't cry or whine. She pulled up YouTube videos and began to learn all she could. She's determined to be a gymnast no matter what. It's been remarkable watching Kadyn work so hard. But, just yesterday she asked "Mom, do you think there will be a cure for CF by this summer so I can start taking gymnastics class?" Because of the incredible kindness of some very special people we didn't have to wait for a cure. Kadyn's dream came true today. It was magical, beautiful, heartwarming, and as Kadyn said..."This was the very best day ever!" There is truly no way to adequately express our thanks to Stephen Morgan, Fox 5 news and the wonderful people at the Springfield Y for giving Kadyn this gift. It is a day none of us will ever forget. We are all going to sleep tonight with smiles that are refusing to fade. You are all angels ❤️ We also want to thank Crystal and Mark Harrington and Indie Blue Salon for hosting such an awesome fundraiser and raising awareness for Cystic Fibrosis! Cannot wait to see who is next!
There are many restrictions and precautions when you have a life-threatening disease. A compromised immune system makes some of the most popular childhood activities dangerous. Every case of cystic fibrosis is different. Therefore, parents must use their best judgement regarding their child. Kadyn gets sick...a lot. She does get to do many many fun things, but she has also paid the price numerous times. While we have always vowed to let Kadyn live and try (as much as possible) not to keep her in a bubble, we have taken a firm stand against some activities that pose a threat. Gymnastics has always been one of those for us. We told Kadyn "no" to classes. She didn't cry or whine. She pulled up YouTube videos and began to learn all she could. She's determined to be a gymnast no matter what. It's been remarkable watching Kadyn work so hard. But, just yesterday she asked "Mom, do you think there will be a cure for CF by this summer so I can start taking gymnastics class?" Because of the incredible kindness of some very special people we didn't have to wait for a cure. Kadyn's dream came true today. It was magical, beautiful, heartwarming, and as Kadyn said..."This was the very best day ever!" There is truly no way to adequately express our thanks to Stephen Morgan, Fox 5 news and the wonderful people at the Springfield Y for giving Kadyn this gift. It is a day none of us will ever forget. We are all going to sleep tonight with smiles that are refusing to fade. You are all angels ❤️ We also want to thank Crystal and Mark Harrington and Indie Blue Salon for hosting such an awesome fundraiser and raising awareness for Cystic Fibrosis! Cannot wait to see who is next!
by Kadyn's Krew
May 19, 2015 at 11:07PM
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by Kadyn's Krew
May 19, 2015 at 11:07PM
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Monday, May 18, 2015
Saturday, May 16, 2015
Friday, May 15, 2015
Tuesday, May 12, 2015
"In late-stage clinical trials, Orkambi was shown to improve lung function in people with CF and significantly reduce the rate of pulmonary exacerbations, which can lead to frequent hospitalizations and worsening lung function. The drug was developed by Vertex Pharmaceuticals Inc. with significant financial and clinical support from the Foundation."
"In late-stage clinical trials, Orkambi was shown to improve lung function in people with CF and significantly reduce the rate of pulmonary exacerbations, which can lead to frequent hospitalizations and worsening lung function. The drug was developed by Vertex Pharmaceuticals Inc. with significant financial and clinical support from the Foundation."
by Kadyn's Krew
May 12, 2015 at 07:26PM
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by Kadyn's Krew
May 12, 2015 at 07:26PM
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Monday, May 11, 2015
There are only 6 tickets left for the boat raffle! Don't miss your chance to win a pontoon boat and support CF!!!! Drawing will be this Friday. Results to be announced on Kadyn's Krew Facebook page. Only a couple more days left to purchase a ticket!!
There are only 6 tickets left for the boat raffle! Don't miss your chance to win a pontoon boat and support CF!!!! Drawing will be this Friday. Results to be announced on Kadyn's Krew Facebook page. Only a couple more days left to purchase a ticket!!
by Kadyn's Krew
May 11, 2015 at 09:29PM
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by Kadyn's Krew
May 11, 2015 at 09:29PM
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Wednesday, May 6, 2015
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