Thursday, April 30, 2009
Dr Ford (the heaven sent pediatrics surgeon at St. Johns) explained that what he found, questions Kadyn's previous diagonsis. Therefore, he has asked that they run additional screens/tests. Though we by no means want to jump to any assumptions, we rely on our strong faith that God has a plan for our sweet baby Kadyn and whatever that may be, she will prosper.
The power of your thoughts and prayers continues to move mountains for our families. We are touched by your love and kindness. Knowing you are thinking of us and praying for Kadyn, strengthens us beyond belief.
Saturday, April 25, 2009
"Welcome to Holland"
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place.
It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
By Emily Perl Kingsley, 1987
Hey! I just wanted to reassure you that Kadyn is more than ok!
She is such a strong little girl- it is amazing! We all have to be
positive about this! God does not give us more than we can
handle and he knows she is a little one that will not let a little
thing like this stop her! She is bright eyed this morning and
very warm! This is not a punishment, there is definitely a
reason she has it! Maybe she will be a champion for cf.
We will wait and see what spectacular things she is meant to
do in life! In the mean time we are not telling her that
she has it- don’t want to give her an excuse to complain :)
Please don’t worry!! When you see her you will know
immediately that everything will be ok! We love you!
We cannot be more appreciative of your thoughts and prayers at this time.
God is good all the time!