Thursday, January 31, 2013
Update
All virus and toxicity panels came back negative. They are going to repeat the ultrasound and KUB this morning to see if anything has changed. They really have no idea why her liver enzymes are still so high. Her dr will be talking to other specialists as well. He is treating the belly and liver as 2 separate things until they can find something to link them. She is now on clear liquids only bc her belly is causing her so much pain and he is afraid she could fill up again. Still no mention of going home.
Tuesday, January 29, 2013
Update
Last night we noticed Kadyn's belly starting to swell a bit and some odd lumps appear. She woke saying that her belly hurt this morning. The pain and lumps continued to progress throughout the day. They took her down for a couple x-rays tonight that really did not show much. We are praying that we get some test results and maybe some possible answers tomorrow. The outpouring of love and support is incredible.
Kadyn is such a force and continues to do everything she can to keep a smile on her face. She is so strong and has endured so much. This evening, Kadyn needed to go potty so I walked her in and sat her down. She asked for privacy, which is hilarious at this point considering the past few days, but I left the bathroom. I went back in a few minutes later and saw that she had tears in her eyes. I asked her what was wrong and she said "sometimes it just hurts so bad mama". At that point, I realized she obviously did not need privacy for the same reasons we would. Kadyn didn't want me to see her cry. What 3 1/2 year old does not let their mommy see them cry???!! She wants so badly to be all better that she is hiding her tears. I hugged her for a very long time after that and while we were hugging I felt her little body relax a bit. What a load my sweet girl is carrying.
Please continue to pray for answers and healing. But, tonight I would also like for you to pray for understanding and peace for Kadyn. She is wise beyond her years and her little mind is working overtime. I pray for her thoughts to be light and childlike and without burden tomorrow. Thank you again for the prayers, support, and love. We love you all so much!
Kadyn's Hospital Recap with updates
Kadyn was admitted for a bowel clean out on the 24th. She started acting strange on the 26th. Yesterday she was sleepy and unresponsive most of the day. They ran some tests. Her glucose was extremely low. They fixed that but she still wasn't responding. They couldn't figure out why so they moved her to ICU
Kadyn is in ICU now and stable. They ran lots of blood tests and have her hooked up to IV fluids- potassium and glucose. Her EKG came back normal. She opens her eyes occasionally but not for long. Basically she's wiped out and sleepy but comfortable.
They found the source of the problem last night. Kadyn's liver enzymes are elevated. Normal for her (and where they were when we got here Thursday) is 30-50... hers are over 2000. They drew a bunch more blood and did an ultrasound of her liver. Will know more when those results are back.
She slept all night. Took blood at 3:30 and she went back to sleep. Potassium is still too low. Liver enzymes showed they are very slowly coming down. So that is good. Still do
n't know a cause and may not until her virus panel comes back (maybe midweek). Until then, we will be here and trusting that God loves her and knows her plan. In the times that she "checks out" we envision Him holding her and shielding her from the battle going on in her little body. As always your prayers, support and love have been overwhelming. It give us so much comfort and we cannot thank you enough. Kadyn update January 29: She's back in a regular room and the NG tube is out so she's very happy about that and back to her talkative self. Her liver enzymes are still very elevated but slowly coming down so that is good. Still waiting on the virus panels to come back and continuing to do blood work. As she told her brother, " they did a hundred sticks on me!"...not quite that many but it probably seemed like it to her!! Still looking for possible toxins in her system that could have affected her liver. Potassium and glucose levels are back to normal. Swelling is down. Her tummy is sore but that could be from the steak and shake she requested for her first meal :). As you can see Kadyn's spirit has been unaffected...Thank you God!!! Thank you Kadyn's Krew and everyone who continues to lift her up in prayer. We love you all so much!
n't know a cause and may not until her virus panel comes back (maybe midweek). Until then, we will be here and trusting that God loves her and knows her plan. In the times that she "checks out" we envision Him holding her and shielding her from the battle going on in her little body. As always your prayers, support and love have been overwhelming. It give us so much comfort and we cannot thank you enough. Kadyn update January 29: She's back in a regular room and the NG tube is out so she's very happy about that and back to her talkative self. Her liver enzymes are still very elevated but slowly coming down so that is good. Still waiting on the virus panels to come back and continuing to do blood work. As she told her brother, " they did a hundred sticks on me!"...not quite that many but it probably seemed like it to her!! Still looking for possible toxins in her system that could have affected her liver. Potassium and glucose levels are back to normal. Swelling is down. Her tummy is sore but that could be from the steak and shake she requested for her first meal :). As you can see Kadyn's spirit has been unaffected...Thank you God!!! Thank you Kadyn's Krew and everyone who continues to lift her up in prayer. We love you all so much!
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